amyopathic dermatomyositis

146 Newtown Road
Woolston
Southampton
SO19 9HR

Tel: 023 8044 9708
Fax: 023 8039 6402
Web: www.myositis.org.uk
Best time to telephone: Monday - Friday, 10am - 3pm

The Myositis Support Group is the only UK charity specific for the inflammatory myopathies; Dermatomyositis, Polymyositis, Inclusion Body Myositis and Juvenile Dermatomyositis.

The Aims of the Myositis Support Group are:

• To provide information to sufferers and their families
• To help give them a better understanding of their illness
• To relieve the isolation felt by an individual when a rare illness is diagnosed
• To guide sufferers in the right direction for treatment
• To raise awareness of the conditions
• To raise funds to promote and support research

The Myositis Support Group is able to offer:

• Free UK membership
• Newsletters
• Information Guides
• Annual meeting/conference
• Advice on specialist centres
• Interactive website - Discussion Forum and Email Contacts (Buddy Listing)
• Listening Ear Telephone Network - volunteers who offer support
• Active fundraising